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Bird and other writings on epilepsy by Susan Hawthorne |
Your work touched me as I don't think I have ever really spoken to another person with epilepsy about what it feels like to have a seizure. Sure people ask about what happens and I explain, but that is very different from talking to somebody who has felt that same feeling. I live in my safe world - the only thing that is different from me and the next guy is that I need to take 8 little pills a day. Your writing brought me back to my seizures, back to the real world, explained to me that it was OK, and let me feel what is so easy to put under the carpet. I often think of epilepsy as my little guardian angel who taps me on the shoulder and says "Craig, I think you're doing too much, are too stressed, and need to take care of yourself". If I listen I will be OK and the older I get, the better I am at listening. The aura is the tap and the shoulder, and I can have them and keep talking in that business meeting and not a soul will know.
The next time you slide down your rope to show others what is must be like to have a seizure, look for the boy in the crowd who is sliding with you, remembering his own sliding and how it changed his life.
Response from Craig
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